He will be remembered for the intense love of his parents and the astonishing support they received from around the world in their vain attempt to care for the sick little boy and try to extend his life as they — not judges, not doctors, not bioethicists — thought best.
There will be much more to say about the utilitarianism drift of medicine and the increasing loss of patient autonomy when the desire is to live rather than die. And let us not forget the erosion of parental rights.
But let’s leave that for now. Our deepest sympathies to Chris and Connie. May the support they received from millions of supporters bring some comfort in the midst of their grief.