Human Exceptionalism

Dwarfism Drug Could Save Lives

An experimental drug is being tested that could add stature to people born with dwarfism. But not all are pleased. From the Bloomberg Business story:

An experimental drug to treat dwarfism by lengthening children’s bones is meeting skepticism from the leading U.S. group that represents little people, which questions giving kids a medication that might make them less little.

Parents like Chelley Martinka, whose daughter has the condition, achondroplasia, say they have no intention of giving their children injections of BioMarin Pharmaceutical Inc.’s BMN 111. That won’t change even if the drug lives up to the promise of its early trials, said Martinka, who blogs about her daughter’s condition at “A Is for Adelaide.”

“My daughter is incredibly smart, she’s funny, she is the most loving person I’ve ever met,” said Martinka, who doesn’t have achondroplasia. “I can’t ask for anything else. To do something superficial, to give her a couple of inches, it’s ridiculous.”

I get that totally. 

But here’s my thing. About 90% of fetuses that test positive for dwarfism are killed in the womb.

Perhaps if parents knew that the child they would rather see dead than little could be made a few inches taller, they might allow their baby to be born.

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