Nothing could have prepared Dean Gregory and Claire Staniforth for the devastating diagnosis they would receive on behalf of their infant daughter. Since her birth in February, Indi Gregory has been treated at the Queen’s Medical Centre in Nottingham, England, for an incurable and degenerative mitochondrial disease.
During her short life, the eight-month-old has experienced progressive brain damage. She has holes in the two main chambers of her heart and fluid in her brain. She’s had multiple surgeries and seizures, ten treatments of needles drilled into her bones, eight trips to intensive care, three cardiac arrests requiring CPR. She is on eight different medications for pain relief and has been on full life support (i.e., intubation and ventilation) since September.
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